Meet SARA-BETH ANN
I want to introduce you to the most Sweetest Little Angel in the world...Her name is        Sara-Beth, and when...
Meet Jameson
Our story begins with a baby boy born on June 28th 2003. He was 8lbs 2oz and arrived by...
Meet Margaret
I was diagnosed with a PTEN mutation in 2002. To say it has been a struggle is an understatement....
Meet Cheyenne
Cheyenne experienced benign tumors starting at age 7. They would develop in her knee and leg, grow, and she...
A letter to PTEN Deletion
Dear Deletion,
My mother-instinct told me you were with us long before we were formally introduced. Â You witnessed the birth...
Jacob’s Story shared by his Mom
This is our PTEN journey so far...Today is PTEN hamartoma tumor syndrome awareness day. This being because it is...
Meet Lauren
After being diagnosed and treated for thyroid cancer at 13, I gained a diagnosis with Cowden Syndrome at 14....
Meet Tami
I have PTEN. This year I became a four-time cancer survivor. As part of my PTEN experience, I was...