Scientific Advisory Board

Dr. Charis Eng

Scientific Advisory

Dr. Pier Paolo Pandolfi

Scientific Advisory

Dr. Ramon Parsons

Scientific Advisory

Dr. Thomas EA Frazier

Scientific Advisory

Dr. Holm Uhlig

Scientific Advisory

Dr. Joanne Ngeow

Scientific Advisory

Hans FA Vasen

Scientific Advisory

Dr. Mustafa Sahin

Scientific Advisory

Dr. Holly Pederson

Scientific Advisory

Learn about PTEN

Get helpful information from researchers, and realize you are not alone.

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Dr. Tom Frazier, CSO for Autism Speaks talking to our families for PTEN Awareness...

  Dr. Thomas Frazier, CSO for Autism Speaks and PTEN Foundation Scientific Board Member, speaking to PTEN families affected by...

Donate to Our One Million Reasons Why Campaign!

Our families matter, we believe that gene therapy and other treatments are within reach, we believe that the only...

Join our Patient-Powered Registry

You can participate here: https://ptenregistry.com/ What is a patient-powered registry? We are excited to bring you a-patient-powered registry. A patient registry is...
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May is PTEN Hamartoma Tumor Syndrome Awareness Month

              May is PTEN Hamartoma Tumor Syndrome Awareness Month!! There are many ways you can participate, see below, and please join...

Our 2019 Patient Symposium was a success

Thank you to all who contributed to the success of our 2019 Patient and Scientific Symposium!       ...