Lori Ortega - Board Member

Lori Ortega resides in Staten Island, NY and has been a teacher for 21 years, however, she feels that her most important and fulfilling job is raising her daughter Meghan. Both Lori and Meghan have a PTEN mutation. Lori and her husband Felix are raising their daughter as they manage work, home life, and all of the challenges that come with a PTEN diagnosis. Despite the adversity, Lori chooses life. She is a friend to all who know her and an extraordinary advocate in the PTEN community. Lori finds joy in sharing her families journey at www.beatingcowdens.com. Through this platform, she connects with patients offering them hope, and she is passionate about encouraging others as she teaches the PTEN community how to “Beat Cowdens.” We are thrilled to have Lori as a member of our PTEN Foundation team. Her altruistic compassion for others makes her an excellent PTEN advocate.

Learn about the PTEN Foundation

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Dr. Tom Frazier, CSO for Autism Speaks talking to our families for PTEN Awareness...

  Dr. Thomas Frazier, CSO for Autism Speaks and PTEN Foundation Scientific Board Member, speaking to PTEN families affected by...

Donate to Our One Million Reasons Why Campaign!

Our families matter, we believe that gene therapy and other treatments are within reach, we believe that the only...

Join our Patient-Powered Registry

You can participate here: https://ptenregistry.com/ What is a patient-powered registry? We are excited to bring you a-patient-powered registry. A patient registry is...
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May is PTEN Hamartoma Tumor Syndrome Awareness Month

              May is PTEN Hamartoma Tumor Syndrome Awareness Month!! There are many ways you can participate, see below, and please join...