Lori Ortega - Board Member

Lori Ortega resides in Staten Island, NY and has been a teacher for 21 years, however, she feels that her most important and fulfilling job is raising her daughter Meghan. Both Lori and Meghan have a PTEN mutation. Lori and her husband Felix are raising their daughter as they manage work, home life, and all of the challenges that come with a PTEN diagnosis. Despite the adversity, Lori chooses life. She is a friend to all who know her and an extraordinary advocate in the PTEN community. Lori finds joy in sharing her families journey at www.beatingcowdens.com. Through this platform, she connects with patients offering them hope, and she is passionate about encouraging others as she teaches the PTEN community how to “Beat Cowdens.” We are thrilled to have Lori as a member of our PTEN Foundation team. Her altruistic compassion for others makes her an excellent PTEN advocate.

Learn about the PTEN Foundation

Support Students with PHTS

Our students often have unique needs, so we worked with our PHTS experts to create this document that families...

Anniversary Celebration Scholarships

We are celebrating ten years of serving you and want to give back. We are offering two $1000 scholarships...

2024 Symposium Scholarship Applications

We hope to see you at the symposium; please don't hesitate to apply if you need help getting there....

Join us for our 8th Annual Patient and Scientific Symposium, October 23-24, 2024, Huntsville,...

Sign up today: (Please note that spaces are limited to 100, and our room block will be extended by...

Your Genetics and Health History Matter

Because it informs research and can provide insights into your risk for certain diseases and conditions. Join us for a...
Translate »