Lori Ortega - Board Member

Lori Ortega resides in Staten Island, NY and has been a teacher for 21 years, however, she feels that her most important and fulfilling job is raising her daughter Meghan. Both Lori and Meghan have a PTEN mutation. Lori and her husband Felix are raising their daughter as they manage work, home life, and all of the challenges that come with a PTEN diagnosis. Despite the adversity, Lori chooses life. She is a friend to all who know her and an extraordinary advocate in the PTEN community. Lori finds joy in sharing her families journey at www.beatingcowdens.com. Through this platform, she connects with patients offering them hope, and she is passionate about encouraging others as she teaches the PTEN community how to “Beat Cowdens.” We are thrilled to have Lori as a member of our PTEN Foundation team. Her altruistic compassion for others makes her an excellent PTEN advocate.

Learn about the PTEN Foundation

We are awarding 2 Academic Scholarship Awards

                            APPLY TODAY BY CLICKING HERE: SCHOLARSHIP APPLICATION LINK

Our Barbecue Fundraiser was a Success!

Thank you to our amazing sponsors and supporters!

Join us for Barbeque, Bingo and Beer, June 27, 2021

Join us for our annual fundraiser! In collaboration with Pourhouse Huntsville and Bark and Barrel, we are excited to host...
PTEN Scholarship

We are excited to officially announce The Liam James Manning Memorial Fund

Liam James Manning Memorial Fund Liam's Fund was developed to honor the life and memory of Liam Manning. The Manning...