Our Mission

The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes. Our team is developing research tools to complement existing research, including our IRB-approved patient registry and biorepository. We fund research, provide PHTS education, and supporting patients. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome.

Our History

We are a patient run organization founded in Dec 2013 to serve the PHTS community by connecting patients and clinicians to collaborate and work together toward a treatment or cure.

PTEN Foundation News and Updates