Registration is live for our August 13, 2020, Patient, and Scientific Symposium. (if you previously registered, you will not need to register again)


We are also excited to collaborate with the Cleveland Clinic team for our 4th Annual Patient and Scientific Symposium to be held at the Cleveland Clinic on March 15, 2021. We will offer a limited number of scholarships for those interested in attending our 2021 patient symposium. Those who have not received a scholarship in the past will be considered first. Scholarships are limited to patients and caregivers and will be given out at the meeting. Please message or with questions.

Complete our Symposium Travel Scholarship interest form here (must be completed entirely)



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