Home
About Us
Mission / History
Board of Directors
Kristin Anthony – President and Founder
Stephen E. Pazian Sr. – Vice President
Stan Anthony – Treasurer
Dr. Michael McFadden – Medical Advisory Committee
Thomas Houser – Board Member
Ashley Jones – Board Member
Saira Sultan – Board Member
Brandy Smith – Board Member
Lori Ortega – Board Member
Dr Bruce R. Korf – Board Member
Scientific Advisory Board
Charis Eng, MD, PhD – Scientific Advisory Board
Dr. Pier Paolo Pandolfi – Scientific Advisory Board
Ramon Parsons, MD, PhD. – Scientific Advisory Board
Dr. Thomas EA Frazier – Scientific Advisory Board
Dr. Holm Uhlig – Scientific Advisory Board
Dr. Joanne Ngeow – Scientific Advisory Board
Hans FA Vasen – Scientific Advisory Board
Dr. Mustafa Sahin – Scientific Advisory Board
Dr. Holly Pederson – Scientific Advisory Board
Latest News
Our PTEN Patients and their Inspiring Stories
News / Updates
Dr. Tom Frazier, CSO for Autism Speaks talking to our families for PTEN Awareness Month
May is PTEN Hamartoma Tumor Syndrome Awareness Month
PTEN Foundation President Kristin Anthony interviewed by Global Genes
PHTS Center of Excellence
PTEN Foundation PSA Teaser
Announcing The Inaugural Int’l PHTS Family Council Leadership Team
PTEN Press Releases
PTEN Foundation awarded $15,000 Grant
COE Press Release Aug 21, 2018
Welcome to the PTEN Foundation
What is PTEN?
What is PTEN Awareness Video
Links and Resources
Patient-Powered Registry (Coming Soon)
PTEN Awareness Art
PTEN Foundation Infographic
Research
PHTS Publications
Join our Patient-Powered Registry
RDCRN DSC PTEN/AUTISM TRIAL
PTEN Study (Cleveland Clinic)
Get Involved
Events
Upcoming Events
Our 2020 PTEN Patient and Scientific Symposium will be held in Boston, Massachusetts
Visit our Events Calendar
More Events Coming Soon
Past Events
Our 2019 Patient Symposium was a success!
Scientific and Patient Symposium 2019
2019 Scholarship Form
2019 PTEN Patient Symposium Registration Link is Live!
2018 Symposium
Photo Gallery
Get Involved
Share your Story
PTEN Advocacy
Donate
Celebrate Someone Special
Volunteer
Partnering Organizations
International PTEN Family Council
Donate Today
Contact Us
Search
PTEN Foundation
Home
About Us
Mission / History
Board of Directors
Kristin Anthony – President and Founder
Stephen E. Pazian Sr. – Vice President
Stan Anthony – Treasurer
Dr. Michael McFadden – Medical Advisory Committee
Thomas Houser – Board Member
Ashley Jones – Board Member
Saira Sultan – Board Member
Brandy Smith – Board Member
Lori Ortega – Board Member
Dr Bruce R. Korf – Board Member
Scientific Advisory Board
Charis Eng, MD, PhD – Scientific Advisory Board
Dr. Pier Paolo Pandolfi – Scientific Advisory Board
Ramon Parsons, MD, PhD. – Scientific Advisory Board
Dr. Thomas EA Frazier – Scientific Advisory Board
Dr. Holm Uhlig – Scientific Advisory Board
Dr. Joanne Ngeow – Scientific Advisory Board
Hans FA Vasen – Scientific Advisory Board
Dr. Mustafa Sahin – Scientific Advisory Board
Dr. Holly Pederson – Scientific Advisory Board
Latest News
Our PTEN Patients and their Inspiring Stories
News / Updates
Dr. Tom Frazier, CSO for Autism Speaks talking to our families for PTEN Awareness Month
May is PTEN Hamartoma Tumor Syndrome Awareness Month
PTEN Foundation President Kristin Anthony interviewed by Global Genes
PHTS Center of Excellence
PTEN Foundation PSA Teaser
Announcing The Inaugural Int’l PHTS Family Council Leadership Team
PTEN Press Releases
PTEN Foundation awarded $15,000 Grant
COE Press Release Aug 21, 2018
Welcome to the PTEN Foundation
What is PTEN?
What is PTEN Awareness Video
Links and Resources
Patient-Powered Registry (Coming Soon)
PTEN Awareness Art
PTEN Foundation Infographic
Research
PHTS Publications
Join our Patient-Powered Registry
RDCRN DSC PTEN/AUTISM TRIAL
PTEN Study (Cleveland Clinic)
Get Involved
Events
Upcoming Events
Our 2020 PTEN Patient and Scientific Symposium will be held in Boston, Massachusetts
Visit our Events Calendar
More Events Coming Soon
Past Events
Our 2019 Patient Symposium was a success!
Scientific and Patient Symposium 2019
2019 Scholarship Form
2019 PTEN Patient Symposium Registration Link is Live!
2018 Symposium
Photo Gallery
Get Involved
Share your Story
PTEN Advocacy
Donate
Celebrate Someone Special
Volunteer
Partnering Organizations
International PTEN Family Council
Donate Today
Contact Us
Visit these Great PTEN Links and Resources Today!
PTEN Foundation in the News
PTEN Foundation: A Top 500 Rare Disease and Congenital Disorder
Personal Blogs
Pinterest Breast Cancer & Cowden’s Syndrome
The Rare Missionary
Hope For Heather
PTEN World
Cowden Syndrome (Previvor) Blog
The Lumpy One Blog
Medical Websites
NCBI – PTEN
The Cleveland Clinic – The PTEN Study
Social Media Sites
Beating Cowdens
PTEN Life
Cowden Syndrome Facebook Group
View Photos from our 2018 Symposium
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