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Anniversary Celebration Scholarships

We are celebrating ten years of serving you and want to give back. We are offering two $1000 scholarships to families with the greatest need. This application is open to all patients diagnosed with PTEN Hamartoma Tumor Syndrome.

Apply by clicking here.

2024 Symposium Scholarship Applications

We hope to see you at the symposium; please don’t hesitate to apply if you need help getting there. Scholarships will be handed out at the event.

Apply here:

2024 Symposium Scholarship Request

Join us for our 8th Annual Patient and Scientific Symposium, October 23-24, 2024, Huntsville, AL

Sign up today: (Please note that spaces are limited to 100, and our room block will be extended by blocks of five as they fill up. These rooms are non-refundable.)

https://secure.givelively.org/event/pten-hamartoma-tumor-syndrome-foundation/8th-annual-pten-patient-and-scientific-symposium

Your Genetics and Health History Matter

Because it informs research and can provide insights into your risk for certain diseases and conditions.

Join us for a webinar empowering you with knowledge on why your story matters and how to share it.

Special Guest. Dr. Tuya Pal

Tuya Pal, MD, is a Professor in the Division of Genetic Medicine in the Department of Medicine at Vanderbilt University Medical Center. Her research interests have consistently focused on epidemiological studies of inherited cancer predisposition.  

Dr. Pal’s research has spanned the cancer prevention and control continuum, with evaluations of genetic etiology, cancer risks, and outcomes, including efforts among underserved populations. She has also evaluated the care delivery of genetic services, including identification, access, utilization, quality of care, and follow-up care. Her efforts among underserved ethnically and racially diverse populations of young women with breast cancer have focused on both the prevention and control of cancer and care delivery, including developing educational and outreach efforts to enhance awareness about inherited breast cancer.

Dr. Pal created the Inherited Cancer Registry (ICARE) initiative. This academic-community partnership provides outreach and education at both the patient and provider level. This effort has resulted in tremendous growth of the research registry, with the recruitment of over 2,000 high-risk participants, including more than 1,000 BRCA carriers.

Click on the following link to join us for the upcoming webinar on 8/31/23 @ 12:30 Central >> Sign Up Here.

This effort is made possible by Global Genes, The Rare Disease Diversity Coalition, and The National Genetics Education and Family Support Center.

2023 PTEN Symposium Scholarship Application

APPLY HERE FOR OUR 2023 SCHOLARSHIP APPLICATION

Join our PTEN Family Research Council

Do you want to make a difference in research? We need you!

Sign up for our family research council today. (Click Here)

2022 PTEN Patient Symposium-Registration is LIVE, Save the Date!

 

Thank you for participating and making our 2022 Patient Symposium a huge success! 

Save the date for our 2023 Patient Symposium that will be held at the Cleveland Clinic on March 27, 2023.

Presentations are uploaded to our YouTube channel. Thank you for your patience while we worked to get these uploaded. We experienced technical difficulties and system logistics.

Click below to access our 2022 patient symposium talks:

2022 Symposium Presentations 

 

PTEN Hamartoma Tumor Syndrome Awareness Day is Oct 23

Help us Raise Awareness.

We’ve created a tool kit for our awareness day. You can share your story or the infographics, and social media language below. Please tag us @ptenfoundation on social media:

PTEN is a tumor suppressor gene. when a patient is born with a pten gene mutation they have a higher lifetime risk of developing breast, thyroid, kidney, colon, endometrial cancer and melanoma. Some patients are also affected with neurodevelopmental disorders. learn more at https://www.ptenfoundation.org #ptenawarenessday2021

 

Today is PTEN awareness day! Currently, there are no treatments for PTEN Hamartoma tumor syndrome. we believe awareness sets us all on a path to treatments. learn more at https://www.ptenfoundation.org #ptenawarenessday2021

 

 

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