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Jacob’s Story shared by his Mom

This is our PTEN journey so far...Today is PTEN hamartoma tumor syndrome awareness day. This being because it is...

Meet Jennifer and Preston

Hello, my name is Jennifer, and my son is Preston.  We live in Dallas, TX. Preston is ten years...

Meet Daphne

Daphne is 4 years old – she has been diagnosed with PTEN since she was just over one although...

Meet Nikolas

Our son came to us at birth through foster care, and by 20 months he was ours forever through...

Meet Ross

My name Ross McRae I'm from Scotland just about to turn 21. I was diagnosed about 14 years ago maybe longer...

Meet David

Meet David I will try my best to explain my mothers and my own story with Cowden's Syndrome.  My story...

Meet Andrea

My name is Andrea Beilstein, and I am 48 years old. 24 years ago, I married the love of...

Meet Amélie

I am a survivor!  My life struggles include a mastectomy with capsular contracture, infections, hysterectomy, reconstruction, oophorectomy, thyroidectomy, 20+...

Meet SARA-BETH ANN

I want to introduce you to the most Sweetest Little Angel in the world...Her name is         Sara-Beth, and when...

Meet Emmi

In late 2009 I was given a presumptive diagnosis of Cowden’s syndrome (CS); this came about in a rather...