Meet Jameson

Our story begins with a baby boy born on June 28th 2003. He was 8lbs 2oz and arrived by...

Meet Tami

I have PTEN. This year I became a four-time cancer survivor. As part of my PTEN experience, I was...

Meet Cheyenne

Cheyenne experienced benign tumors starting at age 7. They would develop in her knee and leg, grow, and she...

Meet Lauren

After being diagnosed and treated for thyroid cancer at 13, I gained a diagnosis with Cowden Syndrome at 14....

Meet Margaret

I was diagnosed with a PTEN mutation in 2002. To say it has been a struggle is an understatement....
I Had Cancer

Ten Rules of Cancer Land- Candid Truth about Cancer and Cowden...

You don’t know what’s in you – until they, the surgeons, go in you. The first thing we want to...
A letter to PTEN Deletion

A letter to PTEN Deletion

Dear Deletion, My mother-instinct told me you were with us long before we were formally introduced.  You witnessed the birth...
Living a Positive Life

Living a Positive Life After Diagnosis

My name is Suzannah. I'm 51 years old , married with two adult daughters and I live in Western...