Meet Lauren

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After being diagnosed and treated for thyroid cancer at 13, I gained a diagnosis with Cowden Syndrome at 14. Suddenly, everything made sense. The small bumps on my hands and feet that didn’t respond to wart treatment, my macrocephaly, the lipomas and fibroids that seemed to be growing everywhere, it all tied together. I also have problems with ADD and dyscalculia, and developmental delay as a toddler. Now, at 15 years old, I’m experiencing neurological symptoms that are Cowden’s related. Emotionally, this diagnosis has been hard, but I’m still fighting

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The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome.

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