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Share Your Stories

Meet Andrea

My name is Andrea Beilstein, and I am 48 years old. 24 years ago, I married the love of...

Meet David

Meet David I will try my best to explain my mothers and my own story with Cowden's Syndrome.  My story...

Meet Ross

My name Ross McRae I'm from Scotland just about to turn 21. I was diagnosed about 14 years ago maybe longer...

Meet Nikolas

Our son came to us at birth through foster care, and by 20 months he was ours forever through...

Meet Jennifer and Preston

Hello, my name is Jennifer, and my son is Preston.  We live in Dallas, TX. Preston is ten years...

Meet Daphne

Daphne is 4 years old – she has been diagnosed with PTEN since she was just over one although...
I Had Cancer

Ten Rules of Cancer Land- Candid Truth about Cancer and Cowden...

You don’t know what’s in you – until they, the surgeons, go in you. The first thing we want to...
Living a Positive Life

Living a Positive Life After Diagnosis

My name is Suzannah. I'm 51 years old , married with two adult daughters and I live in Western...

Meet Emmi

In late 2009 I was given a presumptive diagnosis of Cowden’s syndrome (CS); this came about in a rather...

Meet Amélie

I am a survivor!  My life struggles include a mastectomy with capsular contracture, infections, hysterectomy, reconstruction, oophorectomy, thyroidectomy, 20+...
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