Meet Nikolas
Our son came to us at birth through foster care, and by 20 months he was ours forever through...
Meet Daphne
Daphne is 4 years old – she has been diagnosed with PTEN since she was just over one although...
Meet Margaret
I was diagnosed with a PTEN mutation in 2002. To say it has been a struggle is an understatement....
Meet AmeÌlie
I am a survivor! Â My life struggles include a mastectomy with capsular contracture, infections, hysterectomy, reconstruction, oophorectomy, thyroidectomy, 20+...
Meet Andrea
My name is Andrea Beilstein, and I am 48 years old. 24 years ago, I married the love of...
Meet Jennifer and Preston
Hello, my name is Jennifer, and my son is Preston. Â We live in Dallas, TX. Preston is ten years...
Meet Emmi
In late 2009 I was given a presumptive diagnosis of Cowden’s syndrome (CS); this came about in a rather...
Meet Jameson
Our story begins with a baby boy born on June 28th 2003. He was 8lbs 2oz and arrived by...
Meet Tami
I have PTEN. This year I became a four-time cancer survivor. As part of my PTEN experience, I was...
Meet Cheyenne
Cheyenne experienced benign tumors starting at age 7. They would develop in her knee and leg, grow, and she...