Meet Nikolas

Our son came to us at birth through foster care, and by 20 months he was ours forever through...

Meet Daphne

Daphne is 4 years old – she has been diagnosed with PTEN since she was just over one although...

Meet Margaret

I was diagnosed with a PTEN mutation in 2002. To say it has been a struggle is an understatement....

Meet Amélie

I am a survivor!  My life struggles include a mastectomy with capsular contracture, infections, hysterectomy, reconstruction, oophorectomy, thyroidectomy, 20+...

Meet Andrea

My name is Andrea Beilstein, and I am 48 years old. 24 years ago, I married the love of...

Meet Jennifer and Preston

Hello, my name is Jennifer, and my son is Preston.  We live in Dallas, TX. Preston is ten years...

Meet Emmi

In late 2009 I was given a presumptive diagnosis of Cowden’s syndrome (CS); this came about in a rather...

Meet Jameson

Our story begins with a baby boy born on June 28th 2003. He was 8lbs 2oz and arrived by...

Meet Tami

I have PTEN. This year I became a four-time cancer survivor. As part of my PTEN experience, I was...

Meet Cheyenne

Cheyenne experienced benign tumors starting at age 7. They would develop in her knee and leg, grow, and she...