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Meet our Patients

Meet Nikolas

Our son came to us at birth through foster care, and by 20 months he was ours forever through...

Meet David

Meet David I will try my best to explain my mothers and my own story with Cowden's Syndrome.  My story...

Meet Ross

My name Ross McRae I'm from Scotland just about to turn 21. I was diagnosed about 14 years ago maybe longer...

Meet Margaret

I was diagnosed with a PTEN mutation in 2002. To say it has been a struggle is an understatement....

Meet Andrea

My name is Andrea Beilstein, and I am 48 years old. 24 years ago, I married the love of...

Meet Emmi

In late 2009 I was given a presumptive diagnosis of Cowden’s syndrome (CS); this came about in a rather...

Meet Tami

I have PTEN. This year I became a four-time cancer survivor. As part of my PTEN experience, I was...

Meet Amélie

I am a survivor!  My life struggles include a mastectomy with capsular contracture, infections, hysterectomy, reconstruction, oophorectomy, thyroidectomy, 20+...

Meet Cheyenne

Cheyenne experienced benign tumors starting at age 7. They would develop in her knee and leg, grow, and she...

Meet Daphne

Daphne is 4 years old – she has been diagnosed with PTEN since she was just over one although...
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