Living a Positive Life After Diagnosis
My name is Suzannah. I'm 51 years old , married with two adult daughters and I live in Western...
Meet Nikolas
Our son came to us at birth through foster care, and by 20 months he was ours forever through...
Meet David
Meet David
I will try my best to explain my mothers and my own story with Cowden's Syndrome. Â My story...
Meet Ross
My name Ross McRae I'm from Scotland just about to turn 21. I was diagnosed about 14 years ago maybe longer...
Jacob’s Story shared by his Mom
This is our PTEN journey so far...Today is PTEN hamartoma tumor syndrome awareness day. This being because it is...
Meet Margaret
I was diagnosed with a PTEN mutation in 2002. To say it has been a struggle is an understatement....
A letter to PTEN Deletion
Dear Deletion,
My mother-instinct told me you were with us long before we were formally introduced. Â You witnessed the birth...
Meet Tami
I have PTEN. This year I became a four-time cancer survivor. As part of my PTEN experience, I was...
Meet Emmi
In late 2009 I was given a presumptive diagnosis of Cowden’s syndrome (CS); this came about in a rather...
Meet Andrea
My name is Andrea Beilstein, and I am 48 years old. 24 years ago, I married the love of...