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Share Your Stories

Meet Nikolas

Our son came to us at birth through foster care, and by 20 months he was ours forever through...

Jacob’s Story shared by his Mom

This is our PTEN journey so far...Today is PTEN hamartoma tumor syndrome awareness day. This being because it is...

Meet David

Meet David I will try my best to explain my mothers and my own story with Cowden's Syndrome.  My story...

Meet Cheyenne

Cheyenne experienced benign tumors starting at age 7. They would develop in her knee and leg, grow, and she...

Meet Ross

My name Ross McRae I'm from Scotland just about to turn 21. I was diagnosed about 14 years ago maybe longer...

Meet SARA-BETH ANN

I want to introduce you to the most Sweetest Little Angel in the world...Her name is         Sara-Beth, and when...

Meet Emmi

In late 2009 I was given a presumptive diagnosis of Cowden’s syndrome (CS); this came about in a rather...
Living a Positive Life

Living a Positive Life After Diagnosis

My name is Suzannah. I'm 51 years old , married with two adult daughters and I live in Western...
I Had Cancer

Ten Rules of Cancer Land- Candid Truth about Cancer and Cowden...

You don’t know what’s in you – until they, the surgeons, go in you. The first thing we want to...

Meet Daphne

Daphne is 4 years old – she has been diagnosed with PTEN since she was just over one although...