The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome.
The PTEN Hamartoma Tumor
We are excited to bring you a patient-powered registry where research is driven by patients and their real-world experience.
What is PTEN Hamartoma Tumor Syndrome?
PTEN Hamartoma Tumor syndrome (PHTS) is a rare genetic condition that causes increased risk for certain cancers, benign growths, and neurodevelopmental conditions.
By Jessica Mester, MS, LGC – Certified Genetic Counselor, PTEN Research/Clinic Coordinator, Cleveland Clinic, Cleveland, OH
What to do if I learn I have PTEN?
Click below to learn more and download our helpful brochures you can take to physician visits.
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Get helpful information from researchers, and realize you are not alone.
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