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Living a Positive Life

Living a Positive Life After Diagnosis

My name is Suzannah. I'm 51 years old , married with two adult daughters and I live in Western...
A letter to PTEN Deletion

A letter to PTEN Deletion

Dear Deletion, My mother-instinct told me you were with us long before we were formally introduced.  You witnessed the birth...
I Had Cancer

Ten Rules of Cancer Land- Candid Truth about Cancer and Cowden...

You don’t know what’s in you – until they, the surgeons, go in you. The first thing we want to...

Meet Nikolas

Our son came to us at birth through foster care, and by 20 months he was ours forever through...

Meet Daphne

Daphne is 4 years old – she has been diagnosed with PTEN since she was just over one although...

Meet Margaret

I was diagnosed with a PTEN mutation in 2002. To say it has been a struggle is an understatement....

Meet Amélie

I am a survivor!  My life struggles include a mastectomy with capsular contracture, infections, hysterectomy, reconstruction, oophorectomy, thyroidectomy, 20+...

Meet Andrea

My name is Andrea Beilstein, and I am 48 years old. 24 years ago, I married the love of...

Meet Jennifer and Preston

Hello, my name is Jennifer, and my son is Preston.  We live in Dallas, TX. Preston is ten years...

Meet Emmi

In late 2009 I was given a presumptive diagnosis of Cowden’s syndrome (CS); this came about in a rather...