Living a Positive Life After Diagnosis
My name is Suzannah. I'm 51 years old , married with two adult daughters and I live in Western...
A letter to PTEN Deletion
Dear Deletion,
My mother-instinct told me you were with us long before we were formally introduced. Â You witnessed the birth...
Ten Rules of Cancer Land- Candid Truth about Cancer and Cowden...
You don’t know what’s in you – until they, the surgeons, go in you.
The first thing we want to...
Meet Nikolas
Our son came to us at birth through foster care, and by 20 months he was ours forever through...
Meet Daphne
Daphne is 4 years old – she has been diagnosed with PTEN since she was just over one although...
Meet Margaret
I was diagnosed with a PTEN mutation in 2002. To say it has been a struggle is an understatement....
Meet AmeÌlie
I am a survivor! Â My life struggles include a mastectomy with capsular contracture, infections, hysterectomy, reconstruction, oophorectomy, thyroidectomy, 20+...
Meet Andrea
My name is Andrea Beilstein, and I am 48 years old. 24 years ago, I married the love of...
Meet Jennifer and Preston
Hello, my name is Jennifer, and my son is Preston. Â We live in Dallas, TX. Preston is ten years...
Meet Emmi
In late 2009 I was given a presumptive diagnosis of Cowden’s syndrome (CS); this came about in a rather...