Home News and Updates

News and Updates

PTEN Foundation News and Updates

Join our Patient-Powered Registry

Patients can participate here: Sign up for our PTEN Patient Registry by clicking here What is a patient-powered registry? We are excited...

Our 2020 PTEN Patient and Scientific Symposium was a success. Thank...

Registration is live for our August 13, 2020, Patient, and Scientific Symposium. (if you previously registered, you will not...

Dr. Tom Frazier, CSO for Autism Speaks talking to our families...

  Dr. Thomas Frazier, CSO for Autism Speaks and PTEN Foundation Scientific Board Member, speaking to PTEN families affected by...

Welcome to the PTEN Foundation

Letter from our President I was diagnosed with a PTEN mutation in 2011 after surviving thyroid cancer.  Like many of...

May is PTEN Hamartoma Tumor Syndrome Awareness Month

              May is PTEN Hamartoma Tumor Syndrome Awareness Month!! There are many ways you can participate, see below, and please join...

COVID-19 Resources and Information

We are here for you! In an effort to keep you informed we have compiled a listing of COVID-19 Resource...

Inaugural PHTS Family Council Announcement

  Family Council Application (Click Here)   Note: We will be sharing new council members for 2021-22.  

Download our Patient Screening Leaflet and Brochure

Screening Guideline Leaflet 2021 PTEN Foundation Screening Leaflet and Brochure PTEN Foundation Brochure ]2021 PTEN Foundation Screening Leaflet and Brochure

Our 2019 Patient Symposium was a success

Thank you to all who contributed to the success of our 2019 Patient and Scientific Symposium!       ...
PTEN Scholarship

COVID-19 Relief Scholarship Application for PTEN Families

We are here for you! We are offering four $500 scholarships to help provide a little relief to our families...