Join our Patient-Powered Registry
Patients can participate here:
Sign up for our PTEN Patient Registry by clicking here
What is a patient-powered registry?
We are excited...
Our 2020 PTEN Patient and Scientific Symposium was a success. Thank...
Registration is live for our August 13, 2020, Patient, and Scientific Symposium. (if you previously registered, you will not...
Dr. Tom Frazier, CSO for Autism Speaks talking to our families...
Dr. Thomas Frazier, CSO for Autism Speaks and PTEN Foundation Scientific Board Member, speaking to PTEN families affected by...
Welcome to the PTEN Foundation
Letter from our President
I was diagnosed with a PTEN mutation in 2011 after surviving thyroid cancer. Â Like many of...
May is PTEN Hamartoma Tumor Syndrome Awareness Month
May is PTEN Hamartoma Tumor Syndrome Awareness Month!!
There are many ways you can participate, see below, and please join...
COVID-19 Resources and Information
We are here for you!
In an effort to keep you informed we have compiled a listing of COVID-19 Resource...
Download our Patient Screening Guidelines Brochure
2024 PTEN Screening Guidelines
PTEN-Brochure-2023.pdf-2Download
Our 2019 Patient Symposium was a success
Thank you to all who contributed to the success of our 2019 Patient and Scientific Symposium!
...
We are excited to officially announce The Liam James Manning Memorial...
Liam James Manning Memorial Fund
Liam's Fund was developed to honor the life and memory of Liam Manning. The Manning...
